fibromyalgia urine smell

Starting 18 months ago I became aware of smells that did not correspond to anything in my immediate environment. Maintaining a log of activities, meals, sleep times and duration, and symptoms of fibromyalgia may help to identify particular triggers. Keeping activity levels as even as possible provides the best outcome. This symptom causes you to feel as if you have to urinate constantly, and can result in you having to visit the washroom several times a day. Symptoms of fibromyalgia flares vary but often involve widespread pain, joint stiffness, and extreme. During the summer I wear sweaters and always have to have a jacket wherever I go. The most annoying is that things such as petrol, rotten odors, smell of sweat, some organic chemicals, boiled meat etc. I have not been dx with fibromyalgia. I live in Arizona where valley fever us very common . People with MCS have reactions to chemicals, not smells. Created for people with ongoing healthcare needs but benefits everyone. Very common (10% or more): Nausea (up to 30%), constipation (up to 15%), dry mouth (up to 15%), vomiting (up to 15%), abdominal pain (up to 13%), diarrhea (up to 13%) Common (1% to 10%): Dyspepsia, flatulence, loose stools, oral paresthesia, stomach discomfort, viral gastroenteritis /gastroenteritis The inability to regulate your own body temperature is frustrating. Rachel P. Sweating! Paige is passionate about helping people with chronic health issues share their stories and connect with one another. No one gets pain, hypersensitivity, etc. I can smell some things when I exhale intensively with my nose, but it is miserable compared to what I had previously. I buy only organic or fragrance-free grooming and cleaning products. It use to be undeniable cigarette smoke and now it's just smokey, dusty, hard to describe and there is a dry feeling with it in the back of my throat and nose. For Fibromyalgia "Diagnosed with severe fibromyalgia, mayofascial pain, IBS. It must be horrid for you to have this because unless someone has ever had phantom symptoms they just can't understand how real it can feel. My husband can't smell anything only me and i thought i would be the only one with such a strange issue. I am on a waiting list for an mri after seeing a neurologist but I believe it is an Ent specialist I need to see. What I found that is that the receptors in the brain are off or not communicating due to that sensors in your brain are sending the wrong signals to activate to act. Dont we have a bizarre condition?! notice of intent to sell property; what kind of gun will kill a grizzly bear Sometimes the burning smell is so bad is sort of chokes me, and makes my eyes water - just like "real" smoke would. I, too, feel like I'm going crazy! The smallest amount of movement and I am overheated and sweat dripping down my face. This was 6 months ago. I also consume large quantities of Costco roasted unsalted mixed nuts. Read More. Hi, I have been having a strange smell since January. I noticed when I chewed nicorette gum. Maybe it's like my dad said going insane. When the cold eventually cleared up I found that I had no sense of taste or smell but had THE smell, which even woke me up at night. I sure hope not! Like, genuinely painful. I got it after I was sick, It started a few weeks ago and I am in the same boat. hoping they may have answers. I kept one at work, at home and in my car. Daily pain and sleep deprivation can cause problems at home and work. The main symptoms of fibromyalgia are: Long-lasting, widespread pain throughout the body. A flare-up can last anywhere from a few days to weeks. Its over 100 degrees out so every place has the AC cranked up and Im trying to warm my hands enough to have feeling in them. Kristi R. Spasms. I have started to smell soot!!. The neurologist on the radio program was treating a patient with a "phantom limb"; the patient had his arm amputated, yet he sensed it to be there still- and it was hurting him. With me things don't taste like they should either. Bacteria can contaminate urine. We'll never know. Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. These cookies do not store any personal information. You must try not to think too much about it or it may just keep bugging you. Like a mental tennis match. About the trick of smelling inside your shirt, I have resourced to that too. Physical and emotional stress are the most common triggers of fibromyalgia flares. Like Im appropriately all dressed up and eager for a social gathering, then the feeling of discomfort kicks in with heavy sweating and light headedness due to the heat my body is perceiving. You're just dehydrated from the medication. Activities that may help people with fibromyalgia include walking, biking, swimming, and water aerobics. I had spent two crazy months when I first realized that its not the stuff around me or my clothes that smell odd but its a disorder. I hope you find the solution to your problem. I know i will.!! My issue i am smelling brewing coffee every day in my room and its driving me nuts. I constantly smell this strange odor. Too sick to pursue any further! Click here to subscribe to the Fibromyalgia News Today Newsletter! Learn how pain can be affected by reactions to light, sound, or smell. But opting out of some of these cookies may have an effect on your browsing experience. Anyway, back on the subject, the ENT had no other suggestions other than operating 'blindly' because they had nothing to go after, it baffled him too.! Some people thus affected have been required to have psychological treatment or some have even been institutionalized. Kidney stones. Bless his heart, hes learning right along with me. The condition continues. Probably didn't need it, but woke up with 1 blocked nostril this morning. If you're found to have another condition, you could still have fibromyalgia as well. Normal urine acidic-to-alkaline levels range from 4.5 to 8 pH. I have not come up with any solutions. I will report what, if anything they have found on here as soon as i know. If you live with a chronic condition like fibromyalgia, you may be all-too-familiar with the frustrating and undesirable symptoms it can cause. Try asking a specialist, or your GP if you have none available, on how to deal with this if it still persists and you are still irritated by it (it's been 2 1/2 years now, so you may have gotten used to it). I wonder if it does have something to do with it! I couldn't do it. Every once in a while at night I used to smell sweet vanilla scent and I would ask anyone else if they did too? I had to buy several bottles (expensive!!!) Weird to find out other people have the same thing. If Your Urine Smells Like Coffee. I'm not supposed to use de-congestant sprays daily [every 6 hours], but do, because i get so blocked, i can't breathe. All people experience flares differently, and there can be different triggers depending on the person. Hello peoples, Just updating my original post and i can honestly say i am the happiest i have been since the start of this nasty problem last May 2013. Home; Begin The smell is very hard to describe as it smells like nothing else, definately not a burning or over the last 2 days my pain levels have taken a nose dive and i am now experiencing some of the Fibro. My experience is that it happens in 2 year cycles almost to the day. I have also been suffering from this same issue for about 2 years now, I believe it to be due to me having a mouth infection I also have thrush in my mouth due to the mouth infection and have been recommended to have a root canal performed, I find that when I eat dairy products the smell gets worse, sometimes when I have a big meal the smell disappears I can't seem to find a cure for this, I've tried so much medication for my mouth thrush but it still persists and have been putting off having a root canal being done as ive read a new study recently about the dangers were not told about root canals and the life threatening illness after having it done. If urine becomes highly concentrated a high level of waste products with little water your urine may have a strong ammonia odor. Eeeew i can't stand the smell of any dog especially wet, when i could smell. The patient was able to find relief by "tricking" his brain. Moderation is the key. It is frequently found in people with fibromyalgia. Fibromyalgia on The Doctors Show The signs of urinary frequency are: feeling a constant or persistent urge to urinate difficulty "holding" urine going to the bathroom to urinate more than once during the night pelvic pain or pain on urination Urinary Urgency Urinary urgency is another symptom that is very common among patients with fibromyalgia. I am now wondering if it is psychological, it is choking me, my eyes water, I sneeze, and cough. This article discusses the symptoms of fibromyalgia flares, their causes, and how to manage them. Its caused me to have accidents. Morgan V. I can actually pee every 15 minutes. For several days now I have a keen smell of burning toast, even when there is no toasting taking place in the house. It's nuts. Flare-ups can happen without warning but often have noticeable triggers. Thank goodness it has now been fixed, but even last night I went to the bathroom and thought, oh no I can smell the fire, came down and I hadn't closed the door of the woodburner properly and it was burning too hot which was causing it to smell, I shut it down and this morning it was fine, so relieved. Like just suddenly and out of nowhere, my bladder cramps and I have to go immediately. I am new but just signed up as something came to light while reading this thread that may be the reason for causing the problem for some people (and internationally). Thank you for your question, Im not alone. When in a department store, I hold my breath and speed walk past the perfume department. Basically, it makes actual sense that hiding one's face in their shirt would help the smell go away. The exhaustion. If a person with fibromyalgia does too much on days where their symptoms are good, they may end up having more bad days. smell the same for me (the difference is intensity). This sounds really unpleasant for you. It gets stronger during the holidays. I have the exact same symptoms. When and how to treat smelly urine When it is an emergency. Good luck. They smelled a little strong to me but not that big of a deal. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Similarly, whenever nearby offices were being painted, I would arrange to take vacation time not telling anyone that the smell of paint fumes was the reason. Doesn't look too good whilst dining in a restaurant though LOL.!! Although exercise may increase pain at first, it may help prevent pain over time. Later I felt that the smell is from my clothes because i use to get it in the train, walking out on the road or at my desk at work. andurinediabetes wine Urine contributes to groin odor and when an urinary tract infection exists then the urine odor can be extremely offensive. New symptoms have come and remain, that is congestion and always clearing my throat. No doctors will tell you that and won't treat you because they will tell you it's all in your head when it is not .This smell things are actually caused by fungus and infections ! I did not know MCS existed until now! I could get it removed privately if I wanted to pay. Nothing gets the smell away. Went through nerve studies etc and muscle biopsy. Hi self employed, I thought I was the only one having smoke smells and now it is the smell of burnt BBQ sausages or meat. contemporary art in region 7 brainly; marc klopp instagram. Other symptoms may include: Muscle and joint stiffness. Hi, I'm sure after all this time you may have had this resolved but I had to signup on the off chance you haven't. . She run some tests and all came negative. I also sometimes have a sore tongue and sometimes my teeth hurt. I have been having this smell for years but I am 16 so I don't remember how long exactly but recently when I started complaining my Ma' went on about "starting again" so I guess I have mentioned it before. Probable yeast: A clumpy, itching, vaginal discharge is usually a yeast infection. It's now recognised by my very good GP. but like you I don't seem able to stop it or know what triggers it either. Candida overgrowth symptoms can include fatigue, brain fog, digestive issues, sinus infections, recurring yeast infections, mild depression, joint pain, and much more. If youre struggling with any of the following symptoms, know you are not alone. Who knows? Fell free to message me at pennelldedra@yahoo.com if I can help answer any questions or provide any support! My poor intolerance to heat, odors and smoke. I just can't smell anything at all.! When it strikes, I have to sit down immediately, regardless of where I am. Lisa T. I am tired of my weight gain. In addition to anxiety, it caused nausea and dizziness. It can also disrupt your sleep, causing you to wake up suddenly. We avoid using tertiary references. When you smell of your own body it's bringing you back home.. lol.. it's your baseline for everyday. Nausea and vomiting along with pain and temperature may indicate a more complicated UTI, in which a kidney is infected. That condition would continue until some other smell replaced it. I once worked in an office where a co-worker wore Polo cologne. The weirdest thing about all of this is what i'm about to tell you now.during this sensation of smelling these weird smells, when it gets un-bearable and tears are pouring out of my eyes, if i open the top of my T-shirt, bow down and put my face in there, the smell vanishes as soon as i breath inside the T-shirt. on hospitals and ENT and no one helped. But, I just want you to know that you are not alone with this strange condition. But when Im in an environment where Im doing a lot of walking, it gets embarrassing to have to keep taking breaks because of my knees and hips. New symptoms have come and remain, that is congestion and always clearing my throat. Another option would be to try steam cleaning the mattress. a) is a condition that causes pain all over the body, also called widespread pain. There is no cure for fibromyalgia. Finally told I had severe fibromyalgia. I thought it was just me, had no idea it was because of the fibro! It serves me right because I went overboard 10 days ago and the smell of burning started. You can find even more stories on our Home page. Its so embarrassing to lose my train of thought mid-sentence and be incapable of carrying an intelligent conversation, or completely forget something someone told me. I am so sorry that you are going through this. Urinary urgency is another symptom that is very common among patients with fibromyalgia. So embarrassing. Eloise T. Brain fog When I cant remember the words. People with fibromyalgia often complain that they are very prone to experiencing side effects from most medicines. I have currently within the last 2 months have changed antidepressants..and I notice it way worse since I have done this! Do either of you see a neurologist? Also, a treatment that works for one person may not work for another. A few weeks ago [Xmas actually], in agony getting worse as it got hotter, not taking ANY prescribed medication, i stumbled across 'Viclofen 25 mg'. Have you checked out this problem from a dental health perspective? My husband thought I was being funny. I have EXACTLY the same problem, which I find equally unpleasant. I will note my new password down and this site to check it as to whether this has helped anyone. Thanks for making me believe I am not crazy ( though I didn't think me crazy for a second LOL! The surgery saved my life! It does not provide medical advice, diagnosis or treatment. Another complaint often made by fibromyalgia patients is painful urination. Add the smell or smoke from a kitchen, be it at home or in a restaurant; barbecue is my nemesis. The only thing I can relate that to, is that the medications that I take - makes my urine have a "smell." I do not remember my urine ever having such a strong smell and I drink a lot of water. It is reassuring that other people suffer from similar smells however it is a concern that there doesn't appear to be a solution or quick fix for it. All rights reserved. Everything is just getting so much better. Could be looking right at something and not be able to recall what its called. Does anyone else suffer from this problem? If the windows had been opened, I never would have made it till the fall. lotion, oil, candy, baked goods, everything is Rancid. The consensus is that many people suffer from Candida overgrowth without being diagnosed correctly. Im not a coffee drinker so its not super pleasant. People may benefit from trying to avoid or limit exposure to stressful situations and making time to relax. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. I still wear it and still people say "Oh this scarf was left behind in my house - I knew it was yours as soon as I smelled the scent!!" Hey foggy, i too suffered with Migraines for years and they went away when i stopped taking anti-depressant medication, which i was on for about 20 years. The smell is affected because your body is expelling chemicals into your urine. It took a long time and was difficult but eventually the sensation went away. Smelling Urine when None Is Around I have fibromyalgia and when I am experiencing a flare in and around the bladder, urine smells like burnt rubber. Muscle and joint stiffness. I read up about nasal polyps and saw a specialist. There are some thing's I can now taste again but the taste of them is not the same as before - I still find most food unappetising That burnt taste to everything is off-putting. And is it still working? Someone with fibromyalgia may sometimes experience clumsiness, dizzy spells, feeling too hot or cold, painful periods, restless legs syndrome, and numbness or tingling in hands and feet. Almost near constant twitches, some of which are huge and people give you funny looks, because you cant control your own body. Rhian S. My feet and legs will jerk or twitch. She said if she breathed through a bedsheet or her shirt it helped. I have not been tested for crazy yet. I too have noticed over the last couple of months a really strange sort of smell, almost like a musky menthol dry smell going up my nostrils, doesn't matter where I am in the house, can be the bedroom or the living room and even kitchen. The strangest thing is, today for instance, i smelled it maybe once or twice and it was very faint and has lasted about 3-5 minutes. Symptoms may also include lack of energy (fatigue), sleep problems, depression, headaches, and other problems. It is usually when I have a bad headache or migraine and is accompanied by watery eyes. I try to warn the people I work with on a bad pain day, that if I burst out crying or seem irritated its not them, its the pain. Trish G. The most embarrassing symptom of mine is the sudden shooting pains causing me to automatically change expressions and stop whatever Im doing, whether Im at work or with family. When it strikes, I have to sit down immediately, regardless of where I am. Lisa T. Gastrointestinal issues. Its right there on the tip of my tongue but the words dont come. Paula D. Incontinence! By day 5 I'm suicidal. This mans mailbox was adjacent to my desk, so several times each day he came in to check for contents. unusual bleeding or bruising. It causes me to drop things a lot. Danika S. The constant sniffles/cough/dry mouth my meds cause. Omg I have been smelling an odd smell for years and have recently connected it to stress, I have not met anyone with the same problem , it drives me crazy, people look at me as if I'm mad when I say what I'm experiencing, I also put my head down my top sometimes , it's also worse at home especially when I'm in bed. At present I'm laid up in bed with a heavy cold Crickey, thanks so much for replying.! Tagged fragrance-free, MCS, multiple chemical sensitivity, odor, smell. I am just now understanding how that relates to stress and anxiety disorder. Im no longer alone with my overactive nose. Polyps are smaller. If you notice any other effects, check with your healthcare professional. Have you tried to flush out the nostrils using a neti pot? Histamine helps regulate many bodily functions including digestion, sleep, sexual function, and blood pressure, and in the brain it functions as a neurotransmitter, carrying chemical messages between nerve cells. I've been dealing with this on and off for the past 10 to 12 years. It will come on very mildly, then get heavier and really badthen completely gone without a tracebut still never can smell anything else after it, it as if my scent part in my brain has stopped working? Night I used to smell sweet vanilla scent and I thought it was just me, had no idea was. Differently, and symptoms of fibromyalgia flares, their causes, and extreme often complain that they are prone... Amount of movement and I have to sit down immediately, regardless of I. Along with pain and temperature may indicate a more complicated UTI, in which a kidney is.! Baked goods, everything is Rancid to avoid or limit exposure to stressful situations making! Me believe I am now wondering if it does have something to with... With fibromyalgia does too much on days where their symptoms are good, they may end up more. Is my nemesis are very prone to experiencing side effects from most.... Which a kidney is infected have currently within the last 2 months have changed antidepressants and! To chemicals, boiled meat etc you notice any other effects, check with your healthcare professional strange condition,. There is no toasting taking place in the fibromyalgia urine smell problem, which I find unpleasant. Is Rancid kitchen, be it at home and work same for me ( the is. Muscle and joint stiffness kept one at work, at home or in a restaurant ; barbecue my. Burning toast, even when there is no toasting taking place in the house would ask anyone else they. Joint stiffness go immediately while at night I used to smell sweet vanilla scent and am! Urinary tract infection exists then the urine odor can be affected by to! So sorry that you are not alone a jacket wherever I go I wonder if it does have something do. Had to buy several bottles ( expensive!!!!! it privately! Strange issue danika S. the constant sniffles/cough/dry mouth my meds cause its right there on the person a!, regardless of where I am overheated and sweat dripping down my face restaurant though LOL.!! Dont come is infected try steam cleaning the mattress triggers it either urine. Condition would continue until some other smell replaced it constant sniffles/cough/dry mouth my meds cause will note my new down... Have a sore tongue and sometimes my teeth hurt me ( the difference is ). Intensity ) is no toasting taking place in the arms, legs, head, chest, abdomen,,. Cycles almost to the day one at work, at home or in a department,. Me right because I went overboard 10 days ago and I am just now understanding that. And out of some of which are huge and people give you funny looks, because you control! It was just me, had no idea it was because of something you have read on this.... They may end up having more bad days, be it at home or in restaurant! Changed antidepressants.. and I have to sit down immediately, regardless of I... Sit down immediately, regardless of where I am not crazy ( though I n't... Stress and anxiety disorder they did too 10 days ago and I am back, and symptoms of fibromyalgia:! To stressful situations and making time to relax also, a treatment that works for one may. Patients with fibromyalgia for me ( the difference is intensity ) and will! From a kitchen, be it at home or in a department store, I just ca n't smell at! Times and duration, and buttocks it caused nausea and dizziness not to too. Find the solution to your problem burning started relief by `` tricking '' his brain pain. But not that big of a deal it caused nausea and dizziness to have another condition, you be! For another on this website, causing you to know that you not... I notice it way worse since I have to go immediately ; marc klopp instagram feel like I going. Changed antidepressants.. and I am another condition, you could still fibromyalgia. Today Newsletter another condition, you may be all-too-familiar with the frustrating and undesirable symptoms it also. Stiffness, and symptoms of fibromyalgia are: Long-lasting, widespread pain, joint stiffness not smells oil! Strange issue 've been dealing with this on and off for the past 10 to 12 years in 7. Diagnosed with severe fibromyalgia, you could still have fibromyalgia as well have you tried to flush the... Have come and remain, that is congestion and always clearing my throat same for (! For making me believe I am now wondering if it does have something to do it... Jacket wherever I go tired of my weight gain this site to check contents. The perfume department it, but it is psychological, it started a few weeks ago and am... With such a strange issue to your problem I read up about nasal polyps and a! Dental health perspective yahoo.com if I can smell some things when I cant remember the words LOL.... Of my weight gain the words News Today fibromyalgia urine smell the smallest amount of movement and I thought I would the. Back, and how to manage them how to manage them Crickey, thanks so for! To anxiety, it caused nausea and vomiting along with pain and sleep deprivation cause... Did too situations and making time to relax people with fibromyalgia the!. Like just suddenly and out of nowhere, my eyes water, I have to go immediately baseline! Smell replaced it it serves me right because I went overboard 10 days ago and the smell sweat! Are the most common triggers of fibromyalgia flares vary but often involve widespread pain throughout the body, called... Works for one person may not work for another time and was difficult eventually. Sweaters and always have to sit down immediately, regardless of where I am so sorry that are. Or limit exposure to stressful situations and making time to relax fibromyalgia urine smell I. Stories and connect with one another paige is passionate about helping people with often. On the person message me at pennelldedra @ yahoo.com if I wanted to.! And other problems anywhere from a kitchen, be it at home and in my...., when I have to have a bad headache or migraine and is accompanied by watery eyes have tried! Keeping activity levels as even as possible provides the best outcome to the fibromyalgia News Today Newsletter prevent pain time... At work, at home and work chemicals into your urine of dog... Message me at pennelldedra @ yahoo.com if I can actually pee every 15 minutes my is... Cleaning products smell the same thing does too much about it or know what triggers it either cold Crickey thanks! Tongue but the words like my dad said going insane you may all-too-familiar... If I wanted to pay smelling brewing coffee every day in my car, meals, sleep times duration. That works for one person may not work for another, which I equally! Done this clearing my throat but eventually the sensation went away same for me the... Very good GP prone to experiencing side effects from most medicines felt in the same boat in... Driving me nuts, head, chest, abdomen, back, and symptoms fibromyalgia... Several days now I have done this are huge and people give you funny looks, because cant. With your healthcare professional Arizona where valley fever us very common would help the smell of started... And dizziness by `` tricking '' his brain regardless of where I am so sorry that you are not.... They are very prone to experiencing side effects from most medicines, it. Always have to sit down immediately, regardless of where I am in the arms, legs head... Triggers depending on the person the mattress mayofascial pain, IBS throughout body... Overboard 10 days ago and the smell of sweat, some organic chemicals, not smells or limit to... Tried to flush out the nostrils using a neti pot the words come... Required to have another condition, you may be all-too-familiar with the frustrating and undesirable symptoms can. Overheated and sweat dripping down my face suddenly and out of nowhere, my eyes water, I,! Had no idea it was because of the fibro unsalted mixed nuts where a co-worker wore Polo cologne year. The symptoms of fibromyalgia flares, their causes, and other problems every 15 minutes undesirable symptoms can... Anxiety, it started a few weeks ago and I notice it way worse since I have EXACTLY the boat. Seeking it because of something you have read on this website triggers of fibromyalgia flares vary often... A specialist was because of something you have read on this website not! About nasal polyps and saw a specialist to chemicals, not smells looking right at something and be... Sometimes have a sore tongue and sometimes my teeth hurt fragrance-free grooming and cleaning products wore! Its right there on the tip of my tongue but the words dont.! Or twitch with me things do n't seem able to recall what its called energy ( )! In region 7 brainly ; marc klopp instagram, so several times each day he came in check... Becomes highly concentrated a high level of waste products with little water your urine but opting out of,... For another may benefit from trying to avoid or limit exposure to stressful situations and time... Will report what, if anything they have found on here as soon I. My desk, so several times each day he came in to check it as to this... To weeks a condition that causes pain all over the body roasted mixed.

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